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WORLD CONGRESS ON PARKINSON'S IN GLASGOW
This prestigious event will be held in Glasgow from September 28 to October 1. Check out the program on www.worldpdcongress.org - copy this into your address bar to go to the website.

YOGA EXPERT RENÉE LE VERRIER TO LAUNCH YOGA DVD IN DUBLIN - OCT 3.
Immediately after the WPC, Renée Le Verrier, who wrote the excellent book on Yoga which we have for sale from our office, will be visiting Dublin specially to launch her DVD which will be an enhancement to her book. She will be at the Tara Towers Hotel on October 3rd where she will speak after Dr Raymond Murphy at the Dublin Branch's meeting. All are welcome and we are most grateful to the Dublin Branch officers for allowing this arrangement. Renée is herself a person with Parkinson's, and had prior to that had a stroke, and she often says that the stroke affected one side and Parkinson's balanced things by affecting the other. We hope to have a detailed interview with Renée for our magazine's winter edition!

EUROPEAN ACTION DAY SURVEY 2010

Introduction
The EPDA Charter launched in 1997 on the first World Parkinson’s Disease Day states that people with Parkinson's disease have the right to:
1. Be referred to a doctor with a special interest in Parkinson's disease
2. Receive an accurate diagnosis
3. Have access to support services
4. Receive continuous care; and
5. Take part in managing the illness

This European survey is the first part of a three-part survey being carried out by the EPDA over the next three years. Its aim is to look at how the ambitions set out in the Charter have been embraced since its launch twelve years ago, and to determine what difference the Charter has made to the overall management of Parkinson’s across Europe. Part one examines whether the first two points of the Charter are being met across Europe in terms of accurate diagnosis and access to a doctor with a special interest in Parkinson’s disease. Your answers will be invaluable in helping the EPDA and the PAI and the other national Parkinson’s organisations to understand the level of care provided to people with Parkinson’s and their families in Europe. The survey is OPEN from 12 April 2010 (European Day of Action) to 29 October 2010.

CLICK HERE to start the survey. This link will take you to the EPDA website Survey page.

It is very important each person with Parkinson’s completes the survey once only. This is to ensure that the results can be accurately analysed to give a true representation of the exact number of people who complete the survey.

PAI ANNOUNCES LAUNCH IN IRELAND OF EPDA INITIATIVE
To help celebrate Brain Awareness Week we have a significant contribution to the knowledgebase for people with Parkinson's and their families and carers, as well as health professionals, a website from the EPDA - Parkinson's Decision Aid - an ideal place to start on your quest for information. Each page holds information on one topic, with answers to the most common questions for that topic. They do not swamp you with information, but if more information is your desire there are links at the top of each page to other more detailed areas. One person called them "Brieflets" and they are that - well worth a look if topic-specific accessible information is what you want.

If you wish, you can print out relevant pages and take with you to your GP or consultant so you can discuss the options. They are a means of initiating dialogue with your medical team. There are leaflets about the website available from our branches, and from some libraries and other public venues. If you cannot locate, phone us on 1 800 359 359 for one. If you want some pages from the PDA website printed out, email:

The press release: PDA Press Release and the website: Parkinson's Decision Aid

MUHAMMAD ALI ACCEPTS LIFE PRESIDENCY AWARD FROM PAI
We thought for a while it wouldn't happen, but it did!. Muhammad Ali accepted the award from the PAI conferring on him the title of Honorary President of the PAI!

There are extracts from the Muhammad Ali film "When we were Kings" - in fact, most of it - on Youtube. The web address to one is:http://www.youtube.com/watch?v=6T_42Pk-cgA&feature=fvw - Just copy this into your address bar to watch the video segment.

Contact: | | | | | |
Please note: you are welcome to print pages from this website for your own use. However, we would ask that you respect the wishes of those People with Parkinson's who have chosen to tell their story in the PWPs section and not reproduce for any other use without permission. Please email the webmaster if you require permission.

The Parkinson's Association of Ireland is a registered charity with limited liability
Company No. 123532, CHY No. 10816
Registered Office: Carmichael House, North Brunswick Street, Dublin 7.

Website © 2005, 2006, 2007, 2008, 2009, 2010 amK - All rights reserved.

June 29 - This important report on the future for Neurological Conditions in Ireland, illustrates the crisis Ireland is facing in neurological care and highlights the steps that need to be taken to address the deficiencies in the area. Click HERE for the press release and HERE to go to the NAI website to download a copy of the report.

Click HERE for leaflet.

We have an ongoing and urgent need for funding for all our work, and thank you in advance - Donate online! Click HERE

Our popular booklet on nutrition for people with Parkinson's, with simple recipes from good wholesome ingredients, with a foreword by Una Anderson Ryan, and an introduction by well known chef Neven Maguire, can now be downloaded - click HERE.

Funding has been cut and donations are down - which is quite natural given the jobs crisis. Our dependence on donations is 100% and so we are appealing for same. Perhaps you know someone who is celebrating a birthday, and could perhaps ask for donations in lieu of presents? Or is someone getting married and looking for table favours - one increasingly popular one is a note saying that the happy couple have made a donation to a named charity.

A slow motorbike race at the Fells Point Hotel in Tralee on September 6th, 2009, yielded over €3,000 towards the cost of providing our National Helpline, with thanks to Joan Rogers for this novel fundraising idea!

Or how about skydiving - www.skydiveireland.ie, the website of Skydive Ireland, where Deirdre Prendergast organised to do a recent tandom skydive for PAI.

Or what about table envelope collections at company events, or asking your employer to match funds for your charitable effort...

We pride ourselves on our quality of service, and we depend on your generosity - why not donate - any amount welcome and appreciated! Click HERE for more information and a form.