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Statement from The Parkinson’s Association of Ireland

about Robin Williams’ early stage Parkinson’s

 

Robin Williams’ wife Susan Schneider has said that he was in the early stages of Parkinson’s Disease at the time of his death. 

Parkinson’s Disease has many symptoms, one of which, sadly, is depression; although it would appear that Robin Williams had a bigger longer-term issue with depression, that pre-dated any Parkinson's diagnosis.

Whilst there has been no statement linking Mr Williams’ death to his diagnosis of Parkinson’s, we appreciate the honesty of Susan Schneider in speaking out about the condition.

With over 9,000 people in Ireland living with Parkinson’s, it is important that we get the message out there that help is available.  The Parkinson’s Association of Ireland has a range of services it provides countrywide, which includes information on the various aspects of Parkinson’s disease, a helpline, and nurse call back service. 

It is important to note that many people live full and active lives with Parkinson’s, but, for some, it is life changing and can be a major worry, for both the patients and their careers.  

Anyone who is worried about their condition can avail of the services of the PAI, and be put in touch with local affiliates of the charity group. 

For more information visit the website www.parkinsons.ie or call 1800 359 359

 

About Parkinson’s Disease

A progressive neurological disorder, which, so far, cannot be cured, the symptoms of Parkinson's, largely dexterity problems, can be effectively controlled with medication for many years. 

Each year hundreds of people in Ireland are diagnosed with Parkinson’s disease, and approximately 9,000 people are currently living with Parkinson's in Ireland.  More young people are now being diagnosed, with symptoms presenting as early as in the thirties and forties.  5% of Parkinson’s patients are under 40.

Tremor, or shaking, often in a hand, arm, or leg; stiff and aching muscles; poor balance and slow, limited movement are the classic symptoms of Parkinson’s disease, which typically begin appearing between the ages of 50 and 60.  They develop slowly and can go unnoticed by family and friends, and even the person who has them.

The Parkinson’s Association of Ireland aims to help people with Parkinson's, their families and carers, and health professionals, by offering support and information on any aspect of living with Parkinson's.  The Association also initiates and funds research into Parkinson's disease, and its causes and effects.

 

Farewell to our Nurse

Our nurse Alison Cashell is leaving us at the end of the month, after 3 and a half years with us. Alison has made the decision to move on to another area of nursing, and we wish her all the best. In the mean time, Nicola Kavanagh PDNS from Tallaght Hospital will be taking over with helpline calls, emails and education, so if you have any questions, get in touch through the helpline (1800 359 359) and we can arrange a call back.

Social Gathering

This year we are returning to the Hodson Bay Hotel, Athlone for our social gathering.On Saturday 6th September, we will hold an Information Update in the morning and will be scheduling interactive activities after lunch. Click HERE for more information.

MEDICAL CARDS

We have had a number of calls about people losing their medical cards. Our advice is to appeal the decision - you can read about how to go about that HERE.

Then you should ensure that the person with Parkinson's has a Long Term Illness (LTI) book. They are entitled to have this regardless of Medical Card status. This books allows all medication used for  treating the various aspects of PD to be dispensed for free. Read about the LTI scheme HERE


New information leaflets

We have added some new information leaflets to our collection, including Pain, Impulsive-Compulsive Behaviours, Dry Mouth and Reflexology. You can view them HERE or call us on 1800 359 359 and we will post some out to you.

 

Membership

If you would like to join or renew your membership, you can download the forms here. to RENEW, click HERE, and to JOIN click HERE. If you are a member of a branch, please forward your completed form directly to your branch. To get all the branch details, click HERE, or if you want to be a general member, and receive only magazines, please send your form to the main office in Dublin.

100% funded by charitable donations and sponsorship

Did you know that we are totally reliant on charitable donations, membership and corportate sponsorship? We receive no government funding, and don't have any charity partners. We, like many other charities, are finding these economic times difficult while we strive to continue to offer free information and advice to people newly diagnosed with Parkinson's, as well as those living with Parkinson's, their families, carers and friends.
If you would like to make any donation, would like to organise or participate in a fundraising event, please contact us on 01-8722234 or contact our Fundraising team by email at fundraising@parkinsons.ie

 

Have you got a story to contribute to the PAI magazine? We want to hear from you!

We are looking for some stories, your experiences and your tales for our magazine. We are looking for articles and stories about things you have done, things you have experienced, good and bad, and all submissions will be considered. Hopefully this will be a regular feature going forward, as our feedback on the magazine says that people with Parkinson's want to hear about other people with Parkinson's.
If you have something you would like considered, please email it to info@parkinsons.ie or post it to us - Parkinson's Assoc of Ireland, Carmichael House, Nth Brunswick St, Dub 7.

 

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Parkinson's Newsletter

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Wed, 17 Sep 2014 01:00:00 PDT

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Wed, 17 Sep 2014 00:00:00 PDT

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Tue, 16 Sep 2014 00:00:00 PDT

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Tue, 16 Sep 2014 00:00:00 PDT

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Tue, 16 Sep 2014 00:00:00 GMT

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Mon, 15 Sep 2014 00:00:00 GMT

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Thu, 11 Sep 2014 01:00:00 PDT

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Thu, 11 Sep 2014 01:00:00 PDT

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Thu, 11 Sep 2014 00:00:00 GMT

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Wed, 10 Sep 2014 00:00:00 GMT

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Wed, 10 Sep 2014 01:00:00 PDT

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Wed, 10 Sep 2014 00:00:00 GMT

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Tue, 09 Sep 2014 00:00:00 GMT

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Tue, 09 Sep 2014 00:00:00 GMT

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Tue, 09 Sep 2014 00:00:00 GMT

A recent survey of more than 1,500 Parkinson's disease (PD)...

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Green Your GoodsHave you got gadgets like mobile phones i-pods, laptops, stuck in drawers or cupboards? Why not convert them into cash for the Parkinson's Association of Ireland. Click on this link to bring you to our GYG web page and follow the three easy steps to make a real difference from unwanted gadgets.