Cork Parkinson’s Association is a dynamic and forward looking organisation representing people living with Parkinson’s in county Cork.
Our ultimate ambition is to drive better care, treatments and quality of life for everyone affected by Parkinson’s by developing a network of local support groups and campaigning for community-based Parkinson’s nurses.
We are Rebels with a cause and because we are here, no one has to face Parkinson’s alone. It is important to join your local Parkinson’s branch as you learn so much more and as a team we can achieve more.
We are Support. We are Information. We are Understanding.
But most of all it’s about You
Getting back to normal
We are now focusing on rebuilding our local groups using experience gained over the past two years and are now going forward with Hybrid meetings. The very popular ‘Cork Connect’ Monday Zoom calls at 11.00 will continue but now local groups can meet for coffee and chat on whichever Monday suits them and join the Zoom call from that location. This combines the best of both worlds where you get to meet in person as well as join in the main call.
Annual Parkinson’s Mass
It seems such a long time ago since we were able to have our annual Parkinson’s mass and many of us have fond memories of the Perpetual Motion choir having its first public performance in 2019 at that mass. Emeritus chair, Ted Horgan, has secured Bishop Fintan Gavin to officiate the 2022 Parkinson’s mass on Wednesday, April 27th at 7.00 in St Patrick’s church, Rochestown. Perpetual Motion choir will be there. It will be live-streamed and open to all our members and local groups throughout Ireland – link will be available on www.corkparkinsons.ie
We will be holding a Spring party on Sunday May 1st 2022 at the Silver Springs Hotel, Cork city AND in the West Cork Hotel, Skibbereen, to facilitate our friends living further away from the city.
It is really important that we know in advance how many people plan to attend. With this in mind we will be sharing details of how you can book you place and let us know which venue suits you best. We will be working with your local group leaders to arrange transport to the venue. We are asking people to be seated for 13.00 but please do allow extra time beforehand to meet and greet or renew your membership. If you are unable to join in person, you will be able to join us virtually on Zoom
Parkinson’s Awareness Week
We set the bar very high last year with the virtual CPA spring conference in partnership with Parkinson’s Disease Research Cluster (PDRC) based in UCC. It was a unique opportunity for anyone living with Parkinson’s as well as carers, medical/trainee professionals, healthcare workers, community nurses and support workers to learn more about managing the disease from our top specialists and our question time panel in the evening.
This year we will have three main events:
· Our good friends from Wexford will be visiting us in Cork and will join us in the Unity walk on Sunday April 10th … isn’t it great to get back together again!
· A few of us will be meeting the Cork Chambers of Commerce to talk about ‘Working with Parkinson’s’. This is an ideal opportunity to raise awareness of the disease and highlight what simple adjustments can be made in the workplace to support and enable PWPs.
· We await confirmation from a renowned international researcher detailing the potential link between farming and Parkinson’s. Once this is confirmed, we will be extending an invitation to a broad community including Neurologists and other medical professionals with an interest in Parkinson’s as well as the IFA (Irish Farmers Association) and our own members.
Patients Deserve Campaign
We had a very successful meeting in Buswells Hotel on 24th November and met some very influential Cork TDs who actively support the campaign. We were also joined online by a number of interested parties and other neurological groups anxious to highlight the shortage of Neurological Specialist
Nurses and the impact this has on their members. Since then, we have had a number of Zoom calls and face-to-face meetings with Cork TDs and continue to work closely with Mags Rogers of NAI to drive the campaign. Tony will be going to Leinster House to meet the Health Select Committee to highlight the need for specialist nurses in Cork University Hospital and in particular specialist Parkinson’s nurses. The campaign will close with a big conference in Dublin and CPA will have a stand there to promote awareness of Parkinson’s and much more.
Cork City Half-Marathon
CPA are putting together a team to participate in the half-marathon taking place on June 5th – are we crazy or what? So far, we have three main challengers: Jerome Maume representing YPI, Brid McAuliffe representing Carers, Tony Wilkinson representing the over 60s. There are at least four more members joining the team plus a number of fitter competitors willing to support us along the way. We are raising funds for the first PD resource centre in Ireland …. no small challenge no matter how you look at it. Links to sponsor will be available on the www.corkparkinsons.ie and Cork City Marathon have set up a web page for us too.
Jerome Maume, Tony Wilkinson