Ask The Dietitian Sessions

Post from Richelle Flanagan who will be hosting our “Ask the Dietician sessions next month. Well done Richelle from all in PAI.

“Can’t believe it, just logged in to session before mine starts to hear my abstract was a poster winner! Totally unexpected but delighted to be able to share the nutritional needs of people living with Parkinson’s.”

The unmet nutritional needs of people living with Parkinson’s Disease Authors and affiliations: R Flanagan, Dublin Branch Parkinson’s Association Ireland Introduction:

Nutritional guidelines outline the importance of clinical nutrition to the lives of people living with Parkinson’s Disease (1). Research studies have shown that improving nutritional status improves quality of life for people living with Parkinson’s Disease (2,3,4). Within neurological disorders, Parkinson’s disease is the fastest growing, with predictions of twelve million people worldwide being diagnosed by 2040(5). A report by Parkinson’s UK stated the lifetime risk of developing PD as 1 in 37 in the UK (6) whilst it is 1:15 for people aged 45 in the USA (7). Considering these facts and that Irelands older population is growing, it is important to identify if the nutritional care needs are being met to enhance the quality of life of those living with a progressive and degenerative disease with no cure. To date there has been no research on nutritional needs of people living with Parkinson’s Disease in Ireland. Aim: To identify nutritional care needs amongst the people living with Parkinson’s Disease Methods: A thirteen question survey was distributed to people living with Parkinson’s Disease through the Dublin branch of the Parkinson’s Association of Ireland. All members were emailed an online survey and sent a postal option with a stamped addressed envelope for those who did not have access to the Internet. Results: We received 82 responses, 50 postal and 32 online. 8 out of 10 respondents were over 64 years of age and most have had Parkinson’s for less than 15 years. 87.5% and 79.5% reported that neither their GP nor neurologist, respectively, ever asked them about their diet. 82% said they had never been referred to a Dietitian since diagnosis and 88% of people had never requested a referral to a Dietitian (Figure 1). Of the people who had seen a Dietitian, 70% were happy with the advice they received. 61.2% and 59.3% reported that neither their GP nor neurologist respectively had never weighed them. Whilst 63% had lost weight unintentionally since their diagnosis. 36.4% had difficulty cutting food, 41.6% had difficulty holding utensils e.g., knife, fork, cup and 28.6% had difficulty preparing/cooking food. Almost a quarter had difficulty choking/coughing on food/fluids whilst one fifth had difficulty swallowing food. Almost 50% were not taking a Vitamin D supplement (Figure 2). Conclusion: This survey identifies many of the nutritional needs of people living with Parkinson’s such as weight loss, eating difficulties and constipation all which are known issues within the clinical nutrition literature and guidelines. However, the survey also demonstrates a concerning gap between the nutritional needs of people living with Parkinson’s disease and the delivery of nutritional care by their healthcare providers. A more comprehensive survey of the nutritional care needs of people with Parkinson’s should be carried out for the whole of Ireland alongside a survey of healthcare providers knowledge (e.g., GP’s, neurologists) of the nutritional care needs of people with Parkinson’s disease. This could inform the integration of better nutritional care for people living with Parkinson’s disease within the multidisciplinary team.

Topic: Ask the Dietitian Online Clinic for PAI Members
Every week on Thursday, 20 occurrence(s)
May 13, 2021 12:00
May 20, 2021 12:00
May 27, 2021 12:00
Jun 3, 2021 12:00
Jun 10, 2021 12:00
Jun 17, 2021 12:00
Jun 24, 2021 12:00
Jul 1, 2021 12:00
Jul 8, 2021 12:00
Jul 15, 2021 12:00
Jul 22, 2021 12:00
Jul 29, 2021 12:00
Aug 5, 2021 12:00
Aug 12, 2021 12:00
Aug 19, 2021 12:00
Aug 26, 2021 12:00
Sep 2, 2021 12:00
Sep 9, 2021 12:00
Sep 16, 2021 12:00
Sep 23, 2021 12:00

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