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Communication and Swallowing Issues relating to Parkinson’s Disease

 

Karen Malherbe

Senior Speech and Language Therapist,

Midlands Regional Hospital, Mullingar, Co. Westmeath

 

Communication and Swallowing systems in Parkinson's

 

·       Lack of movement co-ordination (dysarthria) appears as tremors, stiff muscles/joints and slowness in moving lips, tongue, jaw, palate and neck muscles, causing variable difficulties with swallowing, speaking and breathing.

·       Cognition

·       Language

 

Difficulties with:-

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1. Respiration/Breathing

 

·       Up to 87% PD clients have decreased pulmonary/lung function

·       Reduced supply of air leads to poor support for speech because

o      Air is wasted before any sound made

o      Difficulty synchronising respiration and phonation for speech

·       May seem that air ‘runs out’ before words do, so speech is too quiet

 

What to do … for Respiration/Breathing

 

·       TREATMENT WITHIN TEAM APPROACH

 

·       Posture - back up straight

·       Shoulders and upper chest down when taking deep breaths

·       Move your stomach more than your ribs when you breathe


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2. Phonation/Voice difficulties

 

·       Most commonly affected

·       Quality is affected through

o      Loss of volume/loudness

o      Loss of pitch and range

o      Loss of intonation - meaning in voice

o      Harsh, breathy voice

 

What to do … for Phonation and Voice box

 

 

·       é Vocal cord adduction/easy onset techniques - making the most of the voice when starting to speak

·       é Fundamental frequency techniques - keeping the range of the speaking voice

·       Have good coordination of vocal cords

 

 

3. Articulation/Speech difficulties

 

·       Potential movement is not much diminished, BUT

·       Range, accuracy of movements reduced

·       Slurred speech - esp. longer sentences

·       Rate of speech slower/faster

·       Uncontrolled repetitions

·       Difficulty initiating speech

 

4. Resonance - does the sound come through the nose or the mouth?

 

·       Prolongation of any sound by reflection or production of vibrations

·       Either in nose or mouth

·       Excessive/hyper nasality

·       Insufficient/hypo nasality

 

What to do … when Speaking (Articulation/Resonance)

 

·       Be aware of your breathing, RELAX

·       Watch your speed and spit

·       Move your jaw and lips, head, neck and shoulders - use facial exercises

·       Finish each word, then start the next

·       Reduce background noise

·       Get help, but YOU keep talking

·       Lee Silverman Voice Technique - programme to assist with voice specifically of PD

·       Intensive treatment, reinforce techniques, transfer skills

 

5. Prosody - helping speech sound smooth and natural

 

·       Slowed rate of speech OR

·       Quick rate of speech throughout

·       Reduced emphasis/stress

·       Monotonous/flat intonation

 

What to do … In your Environment

 

·       Reduce background noise

·       Speak slowly

·       Make sure they can see your face

·       Over articulate/over exaggerate

·       Comfortable posture

·       Plan around resting times and on/off times

·       Think about what is best for you

·       Use an amplifier

·       Write it down

·       Use an alphabet board

·       Establish the topic before speaking

·       Use telegraphic speech

 

 

 

 

Non-verbal communication

 

·       Reduced facial expression and natural gesture

·       What to do? = reduce pressure and frustration

·       Face muscles can also be affected by weakness

As the listener  we have responsibilities too...

 

·       Talk face-to-face, look at the person

·       Ask Yes/No questions if necessary

·       Repeat the bit you understood

·       Ask for repetition/speak slower/spell

 

 

 

 

Cognition

 

·       Thinking processes may be affected, including

o      memory

o      reasoning

o      judging

o      changing ‘tack’

·       Dementia - reported prevalence varies 10-80%

·       May be confused with other disorders

 

What to do … with Cognitive Difficulties - brain processes

 

·       Memory

o      write it down,

o      limit activities

o      get organised

o      use lists

o      develop a routine for retention

 

·       Disorientation/confusion

o      use a diary,

o      the newspaper – check the date

 

·       Coping with complex/abstract material

o      calming routine,

o      break information  down

 

·       Personality changes

o      don’t take it personally,

o      identify and alter triggers and consequences,

o      give and get feedback


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Language  Difficulties – everyone different

 

·       Word finding difficulties can occur

·       Higher level language may suffer

o      subtleties

o      tone

o      humour

o      sarcasm

·       ‘Thought freezing’

 

What to do … with Language Difficulties

 

·       Individually based – particular to each person

·       Talk around the word or find a substitute - circumlocution

·       Point to beginning letter if you are using a letter board, or use a picture board

·       Train/Ask for topic reminders

·       ‘I don’t understand’ – let the other person know so they can help

 

 

 

 

Swallowing System Issues:

 

·       Same anatomy, same movement difficulties, different system

·       Reduced muscle movement in mouth and throat means a gradual loss of ability to clear food and saliva

·       Team approach

 

 

Swallowing phases

 

·       Oral: - Lip seal, coating, pooling, spillage, chewing, saliva management

·       Pharyngeal: - coating, pooling, penetration, aspiration, coughing

      

 

Choking - know how to deal with it

 

 

Think about …

 

·       Developing a routine

o      adapted crockery/cutlery as necessary to get food to mouth

o      small amounts of food, appropriate modified consistency (Thickened if necessary)

o      sensation and concentration

o      pattern of food in, close lips, chew, suck back

o      swallow strong

o      pause

o      cough and swallow as necessary

 

 

Think about …food and drink

 

·       ESPECIALLY WHEN EATING AND DRINKING!

 

·       Remember

o      Posture of body and mouth

o      Focus on activity before and after swallow

What to do…when eating and drinking – the Five Ps

 

·       Posture - before, during and after

·       Plan the process

·       Pills

·       Pacing yourself  - small mouthfuls, swallow twice, take your time

·       Professional help – seek if a serious problem develops

 

 

 

 

Drooling or Dry Mouth Issues – What to do

 

We produce 1-2 litres of saliva a day.  Saliva is important, but if drooling or dry mouth is a problem, there are steps you can take.

 

If Drooling is a problem:

 

·       Swallow saliva often
·       Close lips, slurp and swallow (up, back, swallow)
·       Keep head upright to facilitate as natural swallowing as possible

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If Dry Mouth (Xerostomia) is a problem:

 

·       Regular fluids

·       Reduce caffeine

·       Peppermints

·       Alternative/artificial products

 

 

 

Additional Information

 

·       Speech and Language Therapy in the Longford/Westmeath area

o      Midlands Regional Hospital:  Mullingar 044 39148

o      St Mary’s Hospital 044 31448

o      Athlone Health Centre 090 6475301

o      Longford Health Centre 043 50169

 

·       About the Writer:

o      Karen Malherbe is originally from Johannesburg, South Africa where she graduated from the University of Cape Town. She came to Ireland in 2003, and has been working with adults and children with the Midlands Health Board since then. In July 2004, she moved full time into hospital adult work, which will, says Karen, allow her to gain more experience in this field. Karen is the Senior Speech and Language Therapist in the Midlands Regional Hospital in Mullingar, and, she concludes “part of an excellent team of therapists”.

 

Disclaimer:  The information contained herein is not exhaustive and does not cover all aspects of diseases, ailments, physical conditions or their treatment. Neither Karen Malherbe nor the Midlands Health Board will accept responsibility or liability whatsoever with regard to the information on this page. In no way are any of the materials presented within this site meant to be a substitute for professional care or attention by a qualified medical practitioner, nor should they be construed as such. You are encouraged to consult with your own Doctor to discuss any course of treatment presented or suggested.
 


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